Local News


Las Vegas Hemophilia Walk, 5K held

Posted at 3:47 PM, Sep 27, 2015
and last updated 2015-09-27 18:47:49-04

Thousands of dollars were raised Saturday for a summer camp that will benefit children with an inherited bleeding disorder.

Several hundred walkers and runners came to Floyd Lamb Park at Tule Springs for the event.
At least $60,000 was raised from the Las Vegas Hemophilia Walk and 5K walk. There was also a walk in Reno on Sept. 12.

The funds will help many families affected by inherited bleeding and clotting disorders such as hemophilia and von Willebrand Disease.

Most of the money will be used to send children and their siblings with an inherited bleeding disorder to a special medically supervised summer camp for free. At Camp Independent Firefly, the kids learn about living with their disease, the importance of a healthy lifestyle, how to self infuse their medication and how to become more independent in spite of their diagnosis.

Funds will also be used for the ongoing support groups which assist those with inherited bleeding disorders and their families. Additionally, money will be set aside for emergency financial assistance for families who need assistance obtaining their life saving medication and for emergency living expenses.